Susan Schneider Williams Speaks at #NOH19

Susan Schneider Williams, widow of famous actor Robin Williams, gave a keynote speech at the annual “Neurology On the Hill” 2019 on Capitol Hill. This event brings together neurologists from across the country to interface with lawmakers and advocate for neurological issues.

In Robin Williams’ final years, he suffered from Lewy body dementia (LBD). This has inspired Mrs. Schneider Williams to become a prominent advocate, fund raiser, and public speaker for brain disease research, in particular finding a cure for LBD. In 2016 she wrote a special editorial, “The Terrorist Inside My Husband’s Brain” that was printed in the Journal of the American Academy of Neurology.

Among the projects Mrs. Schneider Williams now has lined up, are gallery shows in the United States and Europe, with a significant percentage of the proceeds earmarked for the American Brain Foundation of which she is Vice Chair on the board of directors. “My goal is to turn Robin’s suffering into something meaningful,” said Schneider Williams. “Hopefully, from sharing his experience, our experience, I can help raise awareness and increase funding for brain disease research.”

Dr. Mark Mintz, MD, Chief Medical Officer and Founder of CNNH NeuroHealth, was at the event and had a chance to speak with Mrs. Schneider Williams following her well-received speech.

CNNH Goes to Washington #NOH19

For the fourth consecutive year, Dr. Mark Mintz, Chief Medical Officer and Founder of CNNH NeuroHealth, joined the New Jersey delegation for “Neurology On the Hill” #NOH19. This annual event organized by the American Academy of Neurology #AANadvocacy, brings together neurology delegations from across the country on Capitol Hill to advocate for important issues related to neurological care and to help educate senators and representatives on these matters.

Keynote speakers this year included Susan Schneider Williams, widow of Robin Williams. Because of Robin’s tragic story, she has become a prominent advocate for brain disease research, in particular Lewy body dementia (LBD) which had severely affected Robin in his final years. CLICK HERE for a separate CNNH blog post on Mrs Schneider Williams and her efforts…

Another keynote speaker was vice admiral Jerome Adams, MD, the current US Surgeon General.

Dr Mintz had a chance to chat with Mrs Schneider Williams as well as meet Congressmen Jeff Van Drew and John Joyce. We thank them for their support of neurological issues.

Check out these pictures Dr Mintz took from this year’s event, and then keep reading below to learn about the 2019 NOH Priority Issues…

 

Dr Mark Mintz, MD, talks with Susan Schneider Williams, widow of Robin Williams, following her keynote speech on brain research advocacy
US Surgeon General, Vice Admiral Jerome Adams, MD gives a speech at the conference
Meeting with Congressman Jeff Van Drew of NJ’s 1st district, we thank him for supporting NOH and the patients and families we serve.
Meeting with Congressman John Joyce of PA’s 13th district, we thank him for supporting NOH and the patients and families we serve.

2019 NOH PRIORITY ISSUES:

  1. Increasing funding for the NIH, including the BRAIN Initiative, and supporting the reauthorization of the Patient-centered Outcomes Research Institute (PCORI).
  2. Maintaining access to treatments by establishing an exception to step therapy protocols in specific circumstances.
  3. Preserving access to care for neurologic patients by opposing any payment policy that would further devalue complex E/M services.