Susan Schneider Williams, widow of famous actor Robin Williams, gave a keynote speech at the annual “Neurology On the Hill” 2019 on Capitol Hill. This event brings together neurologists from across the country to interface with lawmakers and advocate for neurological issues.
In Robin Williams’ final years, he suffered from Lewy body dementia (LBD). This has inspired Mrs. Schneider Williams to become a prominent advocate, fund raiser, and public speaker for brain disease research, in particular finding a cure for LBD. In 2016 she wrote a special editorial, “The Terrorist Inside My Husband’s Brain” that was printed in the Journal of the American Academy of Neurology.
Among the projects Mrs. Schneider Williams now has lined up, are gallery shows in the United States and Europe, with a significant percentage of the proceeds earmarked for the American Brain Foundation of which she is Vice Chair on the board of directors. “My goal is to turn Robin’s suffering into something meaningful,” said Schneider Williams. “Hopefully, from sharing his experience, our experience, I can help raise awareness and increase funding for brain disease research.”
Dr. Mark Mintz, MD, Chief Medical Officer and Founder of CNNH NeuroHealth, was at the event and had a chance to speak with Mrs. Schneider Williams following her well-received speech.