Hear the stories of brothers Stanley and Stephon, and how coming to CNNH helped them manage their challenging behaviors at home and at school. Now both boys are doing extremely well. Stanley was the first student with autism to join the high school swimming team which captured the hearts of his community and inspired press coverage and the formation of special needs sports programs. Both boys have since medaled at the Special Olympics!
With two children on the autism spectrum, Maryanne shares how hectic life was before she found CNNH.
Maryanne and her family found relief through the collaborative model of care provided at CNNH. Everything she needed was in one location and the medical practitioner and therapists worked together to find a treatment protocol that worked for each of her children.
Maryanne also found community at CNNH, seeing neighbors and friends she had referred in the waiting room before and after her children’s appointments.
When George started having seizures – daily – at age 11, his mother knew she needed specialized medical care to address his issues. She was referred to Dr. Mark Mintz and, from that point forward, she felt like she was no longer alone in their journey. Eighteen years later, George remains seizure-free.
In this video, hear George and his mother, Maureen, explain how the personalized and compassionate care they received at CNNH contributed to a quality of life for George and peace of mind for Maureen.
When Evan’s son, Christopher, was born with multiple health issues, she felt that something wasn’t quite right. While he was eventually diagnosed with autism, she felt like there were other symptoms that did not quite fit his diagnosis. She could not get answers to her questions… until she came to CNNH NeuroHealth.
At CNNH, Christopher benefitted from “precision” or “personalized” medicine where the integrative clinical team – including a neurologist, genetics physician and behavior analyst – evaluated him separate from his diagnosis.
In this video, hear Evan explain how the clinical team’s “inquisitive refusal to give up” revealed new information about her son’s diagnosis and opened up treatment options for Christopher!
In this quick fact sheet, CNNH Neuropsychologist Hilary Murphy, PhD explains what executive functioning is, different executive functioning skills, and what these skills may look like or how they may be used in a home or school setting. It’s important to note that the significance of these skills increases with age as individuals are expected to take on additional academic and social responsibilities.
Neuropsychological evaluations at CNNH NeuroHealth can assess for weaknesses in executive functioning and inform treatment planning. Click the link below to learn more about our neuropsychology services!
Dr. Murphy has extensive experience evaluating children, adolescents, and young adults and her areas of expertise include Attention-Deficit-Hyperactivity Disorder (ADHD), dyslexia, executive functioning, and other specific learning disabilities, Traumatic Brain Injury (TBI), concussion, epilepsy, neuro-oncology and late effects of chemotherapy, stroke, and developmental disabilities.
Susan Schneider Williams, widow of famous actor Robin Williams, gave a keynote speech at the annual “Neurology On the Hill” 2019 on Capitol Hill. This event brings together neurologists from across the country to interface with lawmakers and advocate for neurological issues.
In Robin Williams’ final years, he suffered from Lewy body dementia (LBD). This has inspired Mrs. Schneider Williams to become a prominent advocate, fund raiser, and public speaker for brain disease research, in particular finding a cure for LBD. In 2016 she wrote a special editorial, “The Terrorist Inside My Husband’s Brain” that was printed in the Journal of the American Academy of Neurology.
Among the projects Mrs. Schneider Williams now has lined up, are gallery shows in the United States and Europe, with a significant percentage of the proceeds earmarked for the American Brain Foundation of which she is Vice Chair on the board of directors. “My goal is to turn Robin’s suffering into something meaningful,” said Schneider Williams. “Hopefully, from sharing his experience, our experience, I can help raise awareness and increase funding for brain disease research.”
Dr. Mark Mintz, MD, Chief Medical Officer and Founder of CNNH NeuroHealth, was at the event and had a chance to speak with Mrs. Schneider Williams following her well-received speech.
For the fourth consecutive year, Dr. Mark Mintz, Chief Medical Officer and Founder of CNNH NeuroHealth, joined the New Jersey delegation for “Neurology On the Hill” #NOH19. This annual event organized by the American Academy of Neurology #AANadvocacy, brings together neurology delegations from across the country on Capitol Hill to advocate for important issues related to neurological care and to help educate senators and representatives on these matters.
Keynote speakers this year included Susan Schneider Williams, widow of Robin Williams. Because of Robin’s tragic story, she has become a prominent advocate for brain disease research, in particular Lewy body dementia (LBD) which had severely affected Robin in his final years. CLICK HERE for a separate CNNH blog post on Mrs Schneider Williams and her efforts…
Another keynote speaker was vice admiral Jerome Adams, MD, the current US Surgeon General.
Dr Mintz had a chance to chat with Mrs Schneider Williams as well as meet Congressmen Jeff Van Drew and John Joyce. We thank them for their support of neurological issues.
Check out these pictures Dr Mintz took from this year’s event, and then keep reading below to learn about the 2019 NOH Priority Issues…
2019 NOH PRIORITY ISSUES:
- Increasing funding for the NIH, including the BRAIN Initiative, and supporting the reauthorization of the Patient-centered Outcomes Research Institute (PCORI).
- Maintaining access to treatments by establishing an exception to step therapy protocols in specific circumstances.
- Preserving access to care for neurologic patients by opposing any payment policy that would further devalue complex E/M services.
RECORDED WEBINAR VIDEO CONTENT…
While Attention-Deficit/Hyperactivity Disorder (ADHD) is commonly associated with childhood, research indicates that deficits in attention and executive functioning can persist well into adolescence and adulthood. For those individuals whose symptoms are misunderstood or misdiagnosed, these unaddressed deficits are associated with academic underachievement, underemployment, and psychosocial difficulties. The current presentation seeks to explore the literature regarding the long-term impact of unmanaged or undiagnosed attentional deficits and executive dysfunction and how these symptoms can interfere with all areas of functioning.
Hosted by NJCTS (NJ Center for Tourette’s Syndrome)
Hilary Murphy, PhD
In this recorded Facebook Live event from Dec 11th, 2018, hosted by MITOACTION (http://www.mitoaction.org/), renowned medical geneticist and Director of the CNNH NeuroGenomics program, Richard Boles, MD, discusses the many ways Genetic Testing and the field of NeuroGenomics can positively impact patients lives, whether it is working directly with the patient, or partnering with their primary care physician. Since this event was hosted by MitoAction, he also took time to highlight the relationship between Genetic Testing and Mitochondrial Disorders.
Introducing Dr. Boles is Dr. Pnina Mintz, Vice President of CNNH, who briefly takes the screen to answer questions about CNNH NeuroHealth, who we are and what we do.
In this WEBINAR VIDEO RECORDING, Dr. Richard Boles, MD, Director of the NeuroGenomics program at CNNH discusses how genetic testing contributes to greater knowledge and insight into CVS for better diagnoses and treatments.